What is PORT trying to achieve?

PORT’S scientific objectives can be listed as follows:

1. Classify and define syndromes of chronic intestinal pseudo-obstruction more precisely.

2. Develop a register of UK patients

3. Establish incidence and prevalence of such syndromes in the UK.

4. Establish the burden of such diseases across the UK in economic terms and in respect to quality of life.

5. Establish collaboration and critical mass to enable research into the developmental and other causes of CIP. Such work is likely to include embryological studies and work on acquired neuromuscular abnormalities, and their aetiology and pathogenesis.

6. Establish collaborative research into visceral pain in the context of CIP.

7. In the light of the above develop new treatments and supportive management for patients with CIP.

8. Disseminate knowledge of CIP and support education in relation to it.